A week in the life-Horse & his mom beating Lyme disease
Ist week of school 2019
Mom has MAJOR meltdown with her mom, aka Grama. Mom is out of remission, experiencing debiliatating anxiety & depression & neurological pain. Discussing the realities of this disease...decisions to be made.
1st day of school, Horse feels like crap. Drags himself to school. Wicked cough!
11AM Mom appt for IV therapy at pain managment-nutrients for immune system. 7 pokes, blown veins, bruises everywhere, must come back, dehydrated.
3 PM Occupational Therapy OT for mom’s neck (Lyme induced degenerative disc w/ bone spur, pinches the sciatic nerve, diagnosed at age 30)
3:30 Physical Therapy PT for mom’s lower back & hip (Lyme induced degenerative disc & Lyme arthritis in left hip)
Horse is sick as a dog, drags himself to school.
11 AM School calls, Horse is miserable. Can’t give him Advil bc no signed dr. forma...ugh...
Cancel IV, mom has to reschedule, too bruised.
On hold with US Dept of Treasury for removing 155.00 a month from mom's SS Disability bc she NEVER sent back her income forms re: Relief from student loan. Forms via USPS mail NEVER DELIVERED. Mom repeatedly does not received her US snail mail...WHATEVER...
11 AM appt w pain management, Dr. C. whose been treating mom for almost 3 years. Given prescription for Ibuprofen/Codeine. Mom weaned herself off of Tylenol w Codeine bc doesn't want to be on manufactured pain pills & liver enzymes were too low. IV therapy-RN got it in one stick.
3 PM OT-Mom is exhausted after these appts.
Cancelled Horse’s pragmatic/social skills therapy w LP who has been working w/ him for 9 years!
Papa orders more tinctures for Horse’s Lyme co-infections Mycoplasma & Bartonella treatment.
Mom forgot to pick up returned USPS mail sent back to Horse’s local Lyme specialist in Palm Beach Co. Stamped-we do not live at that address...WHATEVER...
9 AM Dr. appt for Horse, treated Lyme induced Asthma & prescribed antibiotic. Get forms from doc: permission to give Advil & Asthma meds to be given at school.
Drop of scipt at Walgreens. Bring Horse home to sleep. Misses 3rd day of school.
10 AM Mom at surgery center for a rhizotomy/ablation on her neck. Dr. C, an anesthesiologist meticulously uses radio frequency through a needle, essentially burning the sciatic nerve off to relieve pain for up to 6 months.
*1st out of 2 neck ablation procedures. She has had 4 on her lower back w great success. However, when she was very inflamed from stress, it was absolutely excruciating to where she screamed under sedation and body rose off the table ! Her back felt like it was going to rupture out of her body.
To qualify for these procedures, needle epidurals had to be used prior. Thus, having 4 epidural treatments that included 6 injections each time! Excruciating pain!
10:15 AM While being prepped for surgery, Walgreens calls mom, Horse’s insurance no longer accepted after 10 years.
10:30 AM Mom in recovery from surgery experiences instant relief. Mom is delightfully shocked. But scared she will wake up w the same pain. Sedated.
Noon: Mom is home, in a bit of pain. Sends Horse to drop off his own prescription at CVS. Told he can’t get meds until tomorrow? WTF? Never in 10 years w Walgreens did they have to wait more than two hours…
1 PM Call CVS for 1 dose, on hold for 20 min. No one ever answered.
1:15 PM Mom calls Horse’s doc to see if she can get him a day’s dose. Can’t make it happen.
2 PM Walgreens calls about mom's medication. The doctor wrote the wrong dosage. UGHHHHH! So insurance won’t pay for lower dose…Says pharmacist will call my doctor, never does.
Mom wakes up astounded at the pain relief. Scared it will go away!
Mom drops son off at school. School calls before mom gets home to say-she did not sign either of the medication permission slips, the advil cannot be open and they don’t have their own nebulizer. So she sends everything back.
Mom calls Monroe Co. Jail, emails PBC State’s attorney, re: Rafael Llovera, ILLEGAL IMMIGRANT DOB 12/2/1969 convicted of assaulting mom in front of Horse, then chased him for calling 911. Llovera is harassing her from jail via another victim AGAIN-Llovera is a repeat women batterer. Yet, Judge Debra Stephens failed to include Horse on the Injunction for Protection from Domestic Violence. Mom continues to document the system’s lack of protection of Horse & chronic violations of victims' rights...SYSTEM FAIL!
2 PM Social worker from Horse's insurance confirming home visit. To say she can help w the Lyme disease treatment expenses. HA Little does she know!
3 PM OT
3: 30 PT
Mom pick up her own re-written prescription at 4:54 PM. Six min. to spare. Gets a text from Walgreens, her script is delayed due to insurance…
7:47 PM Horse & mom get to CVS just in time to get his antibiotics. Only took a day and a half, when at Walgreens it is only an hour. 9:45 PM text, Walgreens mom’s prescription is ready, 2 ½ days later…
Papa picks Horse up for the weekend.
Papa and Horse opened his first bank account.
Worked on Camp Boggy Creek Transitional Program application for fall dates. This program is for teens who have aged out of camp and are provided extra support, life & work place skills.
The world seems to have slowed down for a brief moment. Horse is at his grandparents. Mom has some down time...to write this, just in time for week 2. To begin...
It never stops...
Brief Health history
TARA/MOM has been sick w/ Lyme disease & co infections, Mycoplasma, Bartonella & Babesia for 38 years. She was bitten at 12 and is now 50. 15 years ago, after her son, Ranson Weber Horse was born, she spiraled into the depths of illness hell. She was finally diagnosed in 2005, BUT was not treated until 2007 where she was receving IV antibitotics & was poisoned by tainted Heparin. Tara settled w Baxter Pharm that killed thousands. Only 5 of the 83 Plantiffs were STILL ALIVE...Tara was 1!
Tara has exstensive neurological damange and chronic pain and used Native American medicine & ceremonies to save their lives! She and Horse were blessed to be clients of Advanced Cell Training, which restored their quality of life after antibiotic treatments. They now use tintures to treat the Lyme etc.
Mom has neuropathy, numbness and tingling in her hands so it takes extra time to write & use mouse...
HORSE-Sick with the same as mother as he was born w all the infections. Sickly child! Heavy metal, preservatives in vaccines, caused permanent brain damage & comprimised his illness. Horse has Lyme induced Autism, ADHD, relapsing infections, special education plan, Math disability, cognitive processing delay!
Abuse of Lyme disease patients is by design. The Cleveland, OH medical system told mom that THERE WAS NO LYME DISEASE IN OHIO! WRONG! They also said that Lyme could not be passed to the baby in the womb! WRONG!