UPDATE!

HORSE IS GOING TO CAMP BOGGY CREEK! HIS LETTER WORKED! YAY!

RANSON RECEIVED A CALL FROM CAMP BC STATING,

"RANSON HAS TO COME TO CAMP!" YAY! 

My Autistic teen born with Lyme disease wrote a letter on his own-to the camp that said NO he cannot attend-bc Lyme disease is NOT an Immune deficiency disease!

Ranson's letter to Camp Boggy Creek...written on his own, by himself...

My son Ranson Weber Horse was born with Lyme disease, Bartonella, Babesiosis & Mycoplasma. Because he was exposed in the womb he his immune system has been severely compromised. No one has any idea how sick kids w/ Lyme can remain throughout their life times. They miss out on a lot of things bc they do not feel good. They spend a lot of their life sleeping trying to regain refreshing sleep that does happen.

With the misunderstanding of Lyme disease, my son’s life has greatly been effected. The two main hospitals in Cleveland repeatedly told me my son was NOT sick, or it was a psychiatric rage at age 2 or it was all in my head because I had Lyme disease. So, Ranson did not get treatment until he was 5! 

My son has been repeatedly abused from the medical & educational communities both here in Cleveland and in Florida. They are many years behind in Florida to even admit it can be passed to a child. So my son continues to suffer…

The latest is- being told he cannot go back to Camp Boggy Creek, a camp for sick children. He attended in 2017 the Immune Deficiency week. However, I was told then that they did not consider Lyme disease an immune deficiency disease, like HIV/AIDS. I had hoped with two years passing and a board full of physicians this would have evolved. But it has not, so my son was told he is not allowed to attend camp this year.

Ranson left this letter on my desk this AM. He did not ask for help. He did it on his own! He is so mature and diplomatic in his letter when I know his heart is dying inside to attend this camp. I know what it is like to fall in love with a camp. That is just one of hurtful/sad things we go through...being sick with a disease no one understands. It breaks my heart to read this letter.

Even with his application in, I had to repeatedly call and call. Even my son called because we did not get a response. Only to be told in April w less than six weeks left until summer, I was finally informed. Even tho I had the application to them in Feb. Then when the Coordinator finally called me back, I confronted her on taking over two months to respond. She hung up on me & said she thought I hung up on her...

If anything, please share to educate the world...our children with Lyme disease suffer so much more sadness, hurt with the world’s ignorance to our disease...

Thank you, Tara Pretends Eagle Weber

Ranson’s mother